This morning I'm getting an infusion like I do every other week. I'm grateful for free Canadian healthcare and the fact that I can get a nurse to come to my house and administer it. 🙏 

It's not easy living with Fabry disease but I guess I make due.

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Dude!! Stoked for you ;-p. 

I haven't spent as much time with Cheese as I would like.  Was never in a space to get to the gigs and well - it was all about the jam so never dug into the catalog.

The String Cheese Incident. I've seen them play 156 times and I'm headed to show 157 on Wednesday hehe

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Posting my journey to grow mentally, emotionally, and be healthy.

Thanks. I was headed towards a massive debt and bankruptcy if I stayed in the USA so I came back north.

Happy that you’re in Canada. Happy that you are doing as best as you can.

Because getting a nurse to come to your house in the states is a couple grand and sheesh.

https://en.m.wikipedia.org/wiki/Fabry_disease

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i can see why especially if it's just a thing every other week cuz it would be a waste 99% or the time. but if you ever have to go to the hospital for stuff and they offer one it made everything so much better not getting poked every couple hours for tests or medicine etc especially in the middle of the just tmi anyway just sharing my port experience 🤪  that's nice that they come out to the house, it's so much more comfortable (imo)

Port is last resort for me. I don't want one.

every other week ? no port ? i felt like i was in the matrix when i had one they just hooked into me whenever 🤣🤪 GL HF!

if you come for the queen you best not miss

I wish! 😭🙏💗 I am always wishing you the best with your health, I’m so happy it’s solid for you up there and I hope it always stays that way for you!!! 

Healthcare access is so fucking important, makes me so happy when someone is able to access affordable care

We could figure something out ha. Come up to Canada :)

You know what Canadian toad, let’s get married

Unfortunately I come bearing nothing of value

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Gm IT ☕

Happy you got a working healthcare system fam. Truly a blessing.

I'm happy to educate people about it cause it's pretty rare but getting less rare every year.

TIL about Fabry disease, thanks for sharing it! (obviously, I wish I had learnt it in a different way)

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Oh. I get it. God make things easy for ya! You are a great guy by the way.🙂

Every two weeks for the last decade or so. This is the only treatment available right now. There are better treatments going through various phases of testing right now.

I heard about it earlier. Great you are treated free these days! Every week for lifelong? Curious.

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oh damn you must be in a chronic condition 
I pray for godspeed improvements 🙏🏼

I have commitment issues || I only commit to good vibes

that’s pretty nice and I do hope you get well real soon

Woah, this is tough icetoad but agreed Canadian healthcare is awesome

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