Icetoad π π© π
@icetoad.eth
This morning I'm getting an infusion like I do every other week. I'm grateful for free Canadian healthcare and the fact that I can get a nurse to come to my house and administer it. π It's not easy living with Fabry disease but I guess I make due.
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Forgotten One π¦
@asimdobe
I heard about it earlier. Great you are treated free these days! Every week for lifelong? Curious.
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Icetoad π π© π
@icetoad.eth
Every two weeks for the last decade or so. This is the only treatment available right now. There are better treatments going through various phases of testing right now.
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