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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Memories from Iceland in 2016. The first time I saw Landmannalaugar. Love at first sight!
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Beatriz pfp
Beatriz
@mandolinaes
Are there many paths there?
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Yes! You can do day hiking and a lot to choose from. Also there is the famous trek where you go from one point to another and stay in huts or camp along the way (4 days). You do have to cross freezing streams and I heard the weather can be really terrible if you choose to camp. But you could be lucky too!
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Beatriz pfp
Beatriz
@mandolinaes
No camp for me. I could die 🥲
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
oh no! 😭 Is it because of a medical issue? You can for sure go there for the day. There is even a bus to go there. We drove both times as we had an F road car. But I took a bus to another area in the highlands for the day too (Thorsmork). And also have been on super jeep tours in the highlands (like the one to that Katla cave that you did too). But the other tour was to Maelifel a moss volcano in black sand and that was much further and was a whole day trip.
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Beatriz
@mandolinaes
Just as extreme heat affects me greatly, the same happens with the cold. My vital signs drop, and I’m left almost lifeless (no body temperature, no strength, and I literally lose my hands and feet). I remember the first time I went to Iceland, I had to buy battery-powered gloves to keep my hands warm.
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Wow. That's intense. What about where you live? Doesn't it get very hot? What causes this to happen? I'm surprised you went to Iceland in the winter.
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Beatriz
@mandolinaes
If you look at my posts during the summer, I’m always complaining because I can barely leave the house due to the intense heat. A big part of what happens to me is because of my Dysautonomia, among other things. When I went to Iceland that winter, I hadn’t been diagnosed yet and just thought it was something that happened to some people. I remember getting out of the car to take a short trail to see a waterfall, but I had to rush back to the souvenir shop where there was heating because I lost all feeling in my hands after taking them out to snap a photo. Now I know more about the condition I suffer from, so I know what I should and shouldn’t do.
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Aw, I'm sorry you have this condition. Was it something that just developed? Do they think it was caused by another medical issue you have? I looked it up and read about it. Seems it can be genetic or caused by other medical issues.
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Beatriz
@mandolinaes
To be honest, I have so many medical issues that I can’t even tell what’s caused by what. My dysautonomia is autoimmune. I tested positive for alpha1 and beta2 adrenergic antibodies. But I’ve had symptoms since I was a kid. They only discovered it last year when an immunologist ordered those tests after spending more than two hours in a consultation listening to everything that had happened to me since birth. He’s been the only one who truly listened to me. These past few years have been a nightmare as the syndromes continue to progress. Right now, I’m dealing with another flare-up of sacroiliitis, and in a few weeks, it’ll be something else. I can’t really explain it well, Kristin, just that this is what I’ve been dealt, and I have to live with it as best as I can.
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
So sorry to hear that. Yes, it can be frustrating to have symptoms and doctors can't find even the cause for it. Can a chiropractor or osteopath help with the sacroilitis? I also read your story on your website about your hearing loss. So this is still a mystery as to the cause? I had a friend in Quebec who had a similar thing happen to her when she was about 35. Just out of the blue and no doctor could figure out why or how to heal it. She uses a hearing aid which seems to help her.
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Beatriz
@mandolinaes
Back then, and even now, the doctors still don’t know the cause. It’s not just me either—there are others who experience the same thing, and no one seems to have any answers. I went through endless tests, but nothing ever explained it. Now, I’m slowly losing hearing in my other ear, and the doctors still don’t seem to care. They just say it’s part of life. So, I’ll probably end up like your friend; with hearing aids in both ears or completely isolated, because hearing loss has a way of cutting you off from the world. You miss out on so much.
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Aw, I'm so sorry. 🫂 Just "part of life?!" Losing your hearing is not a normal "part of life." And you are so young. Just doesn't make sense. My friend who has this issue is actually very social (I met her at a party). I haven't seen her since 2019 since I moved away and then she moved back to Tunisia later on. Her story about her hearing loss was on her website, but she doesn't seem to have it there now. She was an engineer, but after she lost her hearing, she became an artist. It's not totally zero and I could always converse with her in both French and English without a problem. But it started in one ear and then progressed to the other. This is her website: https://soufiabensaid.com/
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Beatriz
@mandolinaes
I have search for her story and I don’t find it there. I was really interested
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
I think she had it there before and must have removed it. I could contact her and tell her about you and connect you two, if you would like.
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