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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Memories from Iceland in 2016. The first time I saw Landmannalaugar. Love at first sight!
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Beatriz pfp
Beatriz
@mandolinaes
Are there many paths there?
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Yes! You can do day hiking and a lot to choose from. Also there is the famous trek where you go from one point to another and stay in huts or camp along the way (4 days). You do have to cross freezing streams and I heard the weather can be really terrible if you choose to camp. But you could be lucky too!
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Beatriz pfp
Beatriz
@mandolinaes
No camp for me. I could die 🥲
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
oh no! 😭 Is it because of a medical issue? You can for sure go there for the day. There is even a bus to go there. We drove both times as we had an F road car. But I took a bus to another area in the highlands for the day too (Thorsmork). And also have been on super jeep tours in the highlands (like the one to that Katla cave that you did too). But the other tour was to Maelifel a moss volcano in black sand and that was much further and was a whole day trip.
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Beatriz pfp
Beatriz
@mandolinaes
Just as extreme heat affects me greatly, the same happens with the cold. My vital signs drop, and I’m left almost lifeless (no body temperature, no strength, and I literally lose my hands and feet). I remember the first time I went to Iceland, I had to buy battery-powered gloves to keep my hands warm.
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Wow. That's intense. What about where you live? Doesn't it get very hot? What causes this to happen? I'm surprised you went to Iceland in the winter.
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Beatriz pfp
Beatriz
@mandolinaes
If you look at my posts during the summer, I’m always complaining because I can barely leave the house due to the intense heat. A big part of what happens to me is because of my Dysautonomia, among other things. When I went to Iceland that winter, I hadn’t been diagnosed yet and just thought it was something that happened to some people. I remember getting out of the car to take a short trail to see a waterfall, but I had to rush back to the souvenir shop where there was heating because I lost all feeling in my hands after taking them out to snap a photo. Now I know more about the condition I suffer from, so I know what I should and shouldn’t do.
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
Aw, I'm sorry you have this condition. Was it something that just developed? Do they think it was caused by another medical issue you have? I looked it up and read about it. Seems it can be genetic or caused by other medical issues.
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Beatriz pfp
Beatriz
@mandolinaes
To be honest, I have so many medical issues that I can’t even tell what’s caused by what. My dysautonomia is autoimmune. I tested positive for alpha1 and beta2 adrenergic antibodies. But I’ve had symptoms since I was a kid. They only discovered it last year when an immunologist ordered those tests after spending more than two hours in a consultation listening to everything that had happened to me since birth. He’s been the only one who truly listened to me. These past few years have been a nightmare as the syndromes continue to progress. Right now, I’m dealing with another flare-up of sacroiliitis, and in a few weeks, it’ll be something else. I can’t really explain it well, Kristin, just that this is what I’ve been dealt, and I have to live with it as best as I can.
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Kristin Piljay 🌲 pfp
Kristin Piljay 🌲
@kristinpiljay
So sorry to hear that. Yes, it can be frustrating to have symptoms and doctors can't find even the cause for it. Can a chiropractor or osteopath help with the sacroilitis? I also read your story on your website about your hearing loss. So this is still a mystery as to the cause? I had a friend in Quebec who had a similar thing happen to her when she was about 35. Just out of the blue and no doctor could figure out why or how to heal it. She uses a hearing aid which seems to help her.
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