@olystuart

Rare Disease Day 2026 is today. Conditions like Prader-Willi Syndrome, the genetic disorder my daughter has, are pretty rare... About 1 in 15,000 to 20,000 in that case. But there are many rare diseases and conditions, and combined they affect millions of people. If you find yourself going through a situation like that, feel free to talk to me or ask me any questions. It can feel very overwhelming and confusing. But there are many people in the rare disease family, you're not alone. ❤️

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