@olystuart

My princess Ripley was featured on a Facebook Prader-Willi Syndrome group today :) she's doing amazing cruising around with her crocodile walker. We just went in for new X-rays and found out her scoliosis got worse despite the back brace because she's been through a growth spurt. So we are getting a new brace she'll have to wear for a couple more years. They said she might need back braces more or less until she's 14 or so. Such a bummer for her but it's better than spine surgery so if it works it'll be worth it. May is PWS Awareness month. It's a rare condition but still affects many people around the world. Look it up and learn about it. Thx friends ❤️✌️

9 replies

7 recasts

80 reactions